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TOP DISABILITY RIGHTS STORIES OF 2003
Other years: 2007 2006 2005 2004 2001
This list does not include the millions of individual stories of
struggle and triumph that are lived out in every pocket of the world each day.
These are, however, the events that may have gained the most attention inside
and outside disability communities. Most of these summaries are followed by
links to expanded Inclusion Daily Express coverage.
They are not in any particular order: Nick's
Crusade Paid Off (Alabama) "Confessed Murderers"
Cleared and Freed (Florida, Arkansas, Pennsylvania) The Shooting Death of Paul Childs III (Colorado) U.S. Supreme Court Rules on ADA Employment Cases (Oregon,
Arizona) Death At Their Parents' Hands
(Minnesota, Indiana, Wisconsin) California Withdraws From
Hason Case (California) Trinidad And Tobago
Activists Score Victory After 15-Week Protest "Terri's Law" Gets Terri Schiavo's Feeding Tube Replaced
(Florida) States Announced Institution Closures,
Then Reversed Positions (United States) Sidney Miller
"Wrongful Life" Case Overturned By State Supreme Court (Texas) Special Olympics Athletes And Supporters Protest Ireland's SARS
Ban (International) Dozens of Death Row Inmates
Test Mental Retardation Ruling (United States) More
States Face Up To Eugenics Past (South Carolina, California, North
Carolina) European Year of the Disabled Celebrated
(International) ADAPT Marches On For MiCASSA -- "Free Our
People" & "Stolen Lives"(United States)
Nick's Crusade Paid Off (Alabama) In
February, Nick Dupree's two-year campaign to stay out of a nursing home paid
off just a few days before his 21st birthday. Dupree has a form of muscular
dystrophy that requires him to use a ventilator and a wheelchair. He receives
in-home nursing care paid through Alabama's Medicaid program. In March 2001, he
started his public awareness campaign "Nick's Crusade" after he learned that
the state would pay for a nursing home -- but not for his in-home care -- once
he turned 21. U.S. Health and Human Services Secretary Tommy G. Thompson
finally announced that the federal government would approve a new program in
Alabama that will continue Medicaid funded in-home services for Dupree and 29
other people in his situation and age group -- including Nick's 18-year-old
brother who has the same form of muscular dystrophy. Nick Dupree's Crusade Pays Off For Him And
Others
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"Confessed Murderers" Cleared and Freed
(Florida, Arkansas, Pennsylvania) During 2003, at least three men with
mental retardation who had confessed to murders were released after their
confessions were discarded. One was Timothy Brown, who reportedly has an IQ
of 56. Brown was freed in May after spending nearly 12 years behind bars for
the 1990 killing of a Broward County, Florida sheriff's deputy. Brown's
confession was thrown out after a former jail guard admitted in February 2002
to killing the deputy. Brown claimed investigators encouraged him to waive his
right to remain silent and put physical and psychological pressure on him to
confess. "Confessed Murderer" Timothy Brown
Freed After Other Inmate Confessed To The Crime (Florida) Charges Thrown Out For Son Who
'Confessed' To Double-Murder - Kevin Senneca(Arkansas) DNA Clears Gettysburg Man After 16
Years Behind Bars -- Barry J. Laughman(Pennsylvania)
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The Shooting Death of Paul Childs III
(Colorado) On July 5, fifteen-year-old Paul Childs III was shot to death
by a Denver police officer while standing in a doorway at his home. Childs, who
had epilepsy and mental retardation, failed to follow police instructions to
drop a kitchen knife he was clutching to his chest. His family had called
police in the hopes that they could help calm him down after a series of
outbursts in his home. A neurologist later suggested that Childs' behavior
prior to the shooting may have been caused by the after-effects of a massive
seizure he had experienced a few days earlier. The incident has prompted
legislators to consider "Paul's Law", a measure that would require all law
enforcement officers and dispatchers in Colorado to undergo crisis-intervention
training, along with specific instruction on dealing with suspects who have
mental illness or developmental disabilities. It also has led the family to
enlist the help of Johnnie L. Cochran Jr. to prepare a federal civil rights
suit against the police department. The Shooting
Death of Paul Childs III
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U.S. Supreme Court Rules on ADA Employment
Cases (Oregon, Arizona) On April 22, the Supreme Court ruled against
Deborah Anne Wells. The Oregon woman had sued her employer claiming she was
demoted then forced to resign in 1997 because of her disability, described as
"a debilitating tissue disorder". In its 7-2 decision, the high court said that
Clackamas Gastroenterology Associates was too small to be covered under the
1990 Americans with Disabilities Act because its owners could not be considered
as employees. High Court Rules Against Wells;
Further Narrows ADA On December 2, the U.S. Supreme Court ruled 7-0 that
a Tucson, Arizona missile plant could legitimately refuse to rehire a former
employee who claimed to have overcome his drug addiction. But the high court
sent the case back to the 9th Circuit Court of Appeals to decide if the company
actually discriminated against Joel Hernandez because of his disability when it
followed a blanket policy to refuse jobs for former workers that had broken
company rules. Raytheon Co. v. Hernandez;
Employer OK To Refuse Rehire
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Death At Their Parents' Hands
(Minnesota, Indiana, Wisconsin) On August 4, Villanova University
history professor Mine Ener used a 12-inch kitchen knife to slice the throat of
her daughter, 6-month-old Raya Donagi, who had Down syndrome. Police said Ener
told them she "did not want the child to go through life suffering" from her
disability, and that she was afraid the baby might have to use a feeding tube.
On August 30, Ener's body was discovered in a jail day room. She had apparently
smothered herself to death with a plastic trash bag. Mom Kills Infant Daughter With Down Syndrome, Then
Kills Self (Minnesota) On January 21, firefighters responding to a house
fire in Elwood, Indiana found the burned body of 8-year-old Mark Adrian Norris
II. Autopsy results confirmed that Mark, who had cerebral palsy and epilepsy,
died of pneumonia at least one day before the fire. Toxicology tests found
evidence that he was malnourished and had not been given prescription medicine
needed to treat his seizures. His mother and a social worker were later charged
with neglect. The Death of Mark A. Norris, Jr:
Was fire a cover-up for his death? (Indiana) On August 22, Terrence
Cottrell Jr. died as a Milwaukee church leader and parishioners attempted to
exorcise the "evil spirits" of autism from him. An autopsy later showed the
8-year-old boy died from suffocation. Junior's mother told police that she
pushed on her son's diaphragm several times during the session in which her son
was wrapped in a sheet to keep him from scratching himself or others. Terrence Cottrell, Jr: Death By Exorcisism
(Wisconsin)
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California Withdraws From Hason Case
(California) On March 7, the U.S. Supreme Court decided not to hear
arguments in the case of Medical Board of California v. Michael J. Hason after
Governor Gray Davis and Attorney General Bill Lockyer dropped the case. Dr.
Hason had sued the Medical Board when it refused to grant him a medical license
because of his depression. Hason argued that the board should have given him a
reasonable accommodation by offering him a probationary license and requiring
him to go through therapy. Many advocates believed that a ruling in the case
could have led to a serious setback for the Americans with Disabilities Act by
further restricting employees from suing state agencies. Medical Board of California v. Michael Hason
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Trinidad And Tobago Activists Score
Victory After 15-Week Protest On August 29, disability rights activists
declared victory after Prime Minister Patrick Manning promised jobs for workers
with disabilities and the introduction of a law similar to the Americans with
Disabilities Act. The protesters had gathered outside the state-owned National
Flour Mills after two qualified men were turned down for jobs at the plant in
early May. Each morning for the next 116 days, the activists -- most of them
members of the Trinidad and Tobago branch of Disabled Persons International --
met in front of the facility to educate reporters, government officials and the
public about their issues. When they ended their protest, the demonstrators
were cautiously optimistic that their action would have a lasting impression on
the island nation's attitudes. Trinidad Activists Score Victory With
15-Week Protest
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Gov. Bush Passes "Terri's Law" To Get
Terri Schiavo's Feeding Tube Replaced (Florida) On October 15, Terri
Schiavo's feeding tube was removed at her husband's request and a Florida court
order. After several months of pressure and letter-writing campaigns by
disability rights advocates and right-to-life supporters, Governor Jeb Bush
championed the speedy passage of "Terri's Law" through the legislature. The law
gave Bush authority to have Terri's feeding tube reinserted six days after it
had been removed. It also appointed an independent guardian to see if Terri,
who has been in what some doctors call a "persistent vegetative state", is
actually aware of her surroundings and might benefit from therapies to teach
her to swallow. Her husband, Michael, immediately filed suit against Bush,
saying the governor illegally intervened in his wife's desire to not live "by
artificial means", and violated the state constitution's separation of powers
provisions. Terri's parents have been fighting to keep their daughter
alive. They accuse their son-in-law of abusing and exploiting Terri for his own
gain and suspect he may have caused the 1990 collapse that caused her brain
damage. Terri Schiavo's Right To
Live
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States Announced Institution
Closures, Then Reversed Positions (United States) In the first three
months of 2003, officials in at least a dozen states announced proposals to
close institutions housing people with developmental disabilities or mental
illness. Most of those plans were made by state lawmakers looking for ways to
deal with financial crises. By mid-year, nearly all of the states had reversed
their earlier positions, or radically slowed down their plans. In the state
of Illinois, newly-elected Governor Rod Blagojevich worked to make good on a
campaign promise to reopen Lincoln Developmental Center, which was closed last
year by former Governor George Ryan: Lincoln Developmental Center -- Illinois
Governor Strives To Return To The Past
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Sidney Miller "Wrongful Life" Case
Overturned By State Supreme Court (Texas) On September 30, the Texas
Supreme Court ruled that doctors do not need to have parental permission before
taking emergency measures to save the life of infants with disabilities. The
case involved the parents of Sidney Ainsley Miller, who was born premature in
1990 at Women's Hospital in Houston. When doctors found that the girl's lungs
were underdeveloped, they gave her oxygen through a throat tube. The Millers
sued the company that owns the hospital claiming the doctors ignored their
requests that "no heroic measures" be taken to keep Sidney alive. A county jury
granted the Millers a $60 million award. The Supreme Court threw out that
award, noting that even though the courts and state laws recognize parents
rights, there are limits when it comes to withholding treatment to a
child. Sidney Miller's Right To Be
Born
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Special Olympics Athletes And Supporters
Protest Ireland's SARS Ban (International) In the days leading up to the
2003 Special Olympics World Summer Games, Ireland's health officials angered
supporters around the world when they announced that athletes from China, Hong
Kong, the Philippines, Singapore and Taiwan would not be allowed to participate
because of the SARS (Sudden Acute Respiratory Syndrome) outbreak in Asia. About
30 members of the Hong Kong Down Syndrome Association protested outside the
Irish consulate, accusing the Irish government of being irrational and
discriminatory. Ireland finally relaxed their restrictions. In June the
island hosted the first World Games outside the United States, with 7,000
athletes and coaches from 160 different countries and an estimated 75,000
spectators. Former South African president Nelson Mandela, former boxing
champion Muhammad Ali, and actor Arnold Schwarzenegger -- who headed up the
Austrian delegation -- were on hand for the opening ceremony.
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Dozens of Death Row Inmates Test
Mental Retardation Ruling (United States) On June 20 of 2002, the U.S.
Supreme Court outlawed the death penalty for convicts that have mental
retardation, calling such practice "cruel and unusual punishment" in violation
of the Eighth Amendment to the Constitution. The high court, however, left it
up to individual states to define mental retardation. Since the ruling, states
that use the death penalty have been passing laws to comply with the ruling,
and dealing with the dozens of death row inmates who now claim that they have
mental retardation. The Death
Penalty and Mental Retardation
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More States Face Up To Eugenics Past
(South Carolina, California, North Carolina) On January 8, South
Carolina Governor Jim Hodges issued a statement apologizing for more than 250
people who had been sterilized under the state's eugenic sterilization laws
during the last century. On March 11, Governor Gray Davis issued a formal
apology to more than 20,000 Californians sterilized under his state's 1908
eugenics law. In August, North Carolina Governor Mike Easley became the
first to approve a number of measures designed to make amends to his state's
residents -- most considered to have mental disabilities -- who had undergone
forced sterilizations. They include education benefits through the University
of North Carolina, access to a health care fund, and a way to help victims to
gain access to their medical records. Easley also approved a panel's
recommendation for a memorial to those who were sterilized and including
information about the eugenics program in the state's history
curriculum. Two Virginia advocates, who secured the first gubernatorial
apology in May 2002, have called on a Congressional investigation into the
federal government's knowledge of the forced sterilizations of more than 60,000
Americans during the 1900s. The Eugenics
Apologies (Ragged Edge Magazine)
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European Year of the Disabled Celebrated
(International) Members of the European Union celebrated the European
Year of Disabled People throughout 2003. The initiative was designed to further
equal rights for the 37 million people with disabilities in EU member nations.
Millions of dollars were given to grassroots groups to fund a wide range of
activities across the continent. Some advocacy groups felt the EYDP was
successful in increasing awareness of disability issues and promoting civil
rights. Others were skeptical of the initiative's long-term affects. Europe's
disability year in review (BBC News)
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ADAPT Marches On For MiCASSA -- "Free Our
People" & "Stolen Lives"(United States) On September 17, several
thousand disability rights advocates from across the country gathered at the
nation's capital to bring ADAPT's "Free Our People" message to Congress. The
demonstrators called on lawmakers to pass MiCASSA, the Medicaid Community-Based
Attendant Services and Supports Act, which would eliminate the system's current
bias toward nursing homes and institutions for long-term supports. Leading
up to the rally was a 144-mile march from Philadelphia's Liberty Bell. A group
of about 150 activists, most in wheelchairs, endured rain, cold, and intense
sun during the 14-day trek to draw public attention to the need for
MiCASSA. Free Our People March
(ADAPT) On May 11, about 100 disability rights activists with ADAPT's
"Stolen Lives" campaign were arrested when they refused to leave the front of
the White House during a protest. The advocates were demanding that President
George W. Bush apologize to those Americans "whose lives have been stolen"
because of the bias in the nation's Medicaid policy. "Stolen Lives" (ADAPT)
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